“Lund, Sweden. 26 May, 2009 – Camurus announced today that the European Medicines Agency’s (EMEA) Committee for Orphan Medicinal Products (COMP) has issued a positive opinion on the application for orphan designation for Camurus’ drug product CAM2029 (octreotide chloride FluidCrystal® Injection depot) for treatment of acromegaly.”
Exciting news – because this drug is a once-a-month drug administered as a subcutaneaous injection using a small thin needle (just under the skin) as opposed to current long-acting preparations of octreotide that need to be administered into muscle tissue. As a result the drug will be straightforward for the patient to administer themselves.
Hi there,
I am just hearing about this Acromegaly. My mother is undergoing tests to determine whether or not she actually has Acromegaly. How long has it been since you were diagnosed and what treatment are you using to treat this?
I hope your mother will be ok. It’s not the end of the world if she does have acromegaly as the treatments available is amazing.
To cut a long story short (for the long answer, have a read through this blog, it takes you right from the beginning), Went to see the doctor on October 15th, 2008. Diagnosed on November 5th, 2008. Started treatment with injections of Octreotide (Sandostatin) on February 7th 2009. So that works out as three and a half months.
See an early timeline:
Still not referred taking ages
First bit of treatment:
Started treatment for acromegaly
Hope your mother is ok.
Trys